I’m Charlie. I built and designed this website. I have multiple sclerosis, and TeamCharliesAngels is the name of my support team (they really are angels). The angels logo was designed by my niece, Stephanie. It is the logo of this website and is displayed on the team shirts we wear during the annual National Multiple Sclerosis Society MS Walk fund raiser.
My email address is firstname.lastname@example.org. Feel free to drop me a line or two if you want. I will respond if I don’t get swamped.
I may wander off topic sometimes, and I may brag sometimes, but that is the advantage of owning my website. Please feel free to email me with comments or contructive ideas. There is a form for that in Contact, above.
As an avid reader, after being diagnosed with multiple sclerosis, I went to the library to find books about this disease. What a surprise! The library had 3 books in the card catalog about ms, and the latest copyright was 1989. Next I hit the bookstores (in Las Vegas, Nevada) to buy a current book about ms. The best I could do there was a book written in 1998, if I wanted to order it. That’s when I found out how little was know about multiple sclerosis. I now have all the books I can find in print, all 11. Thanks to the National Multiple Sclerosis Society and the internet, I am able to keep informed about my disease. I have learned over time that the most correct and knowledgeable source of information is the National Multiple Sclerosis Society. Perhaps that is why I tell people to get in touch with them so often.
I have often referred to multiple sclerosis as a disease of a very elite group. Since there is still so little known about ms, I did a great deal of research to learn about it. At various times, the symptoms are frustrating, frightening, aggravating, depressing, worrisome, ridiculous, unknown for both the victim and those around the victim. It is still a disease that falls into that group that most people prefer to ignore. If it makes you seem drunk, it is better for all around you to pretend you are drunk or that nothing happened than to accept that you are having serious medical problems that can’t be helped. Instead of trying to be helpful, people will often avoid you or treat you like a small child. No person with a health problem needs whispers and looks between you, we need you to accept what is wrong and try to help us when we ask. Since we may be unable to do much at various times, allow us to do what we can when we are able. As our muscles, vision, abilities fade, accept it and help us as individuals to accept it. When we say “I can’t do that today”, believe it. When we say “I can do that”, let us at least try, if you can. I didn’t say it would be easy. If this disease is difficult for family and friends to accept, it is much harder for the person with it. One of the most difficult words in the English language is H-E-L-P! It just doesn’t roll off the tongue when it is really needed by an otherwise or formerly independent adult!